Health care data app for Nextcloud, Kailona, hits alpha and is looking for testers!

Originally published at: Health care data app for Nextcloud, Kailona, hits alpha and is looking for testers! – Nextcloud

The Kailona team believes that health data should be owned by their subject, not by insurance organizations or businesses looking to extract and monetize its data! By building an open source data store, they allow people to take back control over their health data AND use it to gain insights in their health. This project is supported by the wonderful Prototype Fund.

How to control your health data

In most countries, it is mandatory for the healthcare providers to give the patient all their health records within a certain time frame. Sending and receiving data by physical mail or email has obvious security as well as simple usability drawbacks. So putting you back in control over that health data is not easy. But, in part thanks to legislation and the growing digitalization of health care, there is progress. There is an increasing use of standardized file formats for their exchange of data by the software used by health care providers. And even where they are still using PDFs or obscure file formats, Nextcloud is of course very capable handling normal files, making it a great fit for Kailona to build upon.

The Kailona app provides a mechanism for patients to request their health records from a health care provider and even keep track of compliance with the legislative requirements. The goal is for the Kailona users to always have the most complete health record and have absolute ownership and control over the data.

Sharing health data

Kailona enables people to securely share their health data, whether it be with their inner circle of friends and family, a health care provider that needs it or even as an anonymous participant in research endeavors. The Kailona team believes society would greatly benefit from greater use of health care data, as long as informed consent is given and people are in control over the data. There is an important role for a self-hosted platform here!

Learning more about health

Kailona aims to do more than storing and distributing data. It allows people to systematically manage activity, sleep, weight, nutrition, supplements, vital signs, lab results, medical images, pharmaceutical, genomic data and data about the mental and emotional states. Visualization tools allow people to understand the relationships between the data and encourage them to make healthier choices. Kailona is an opportunity for people to discover paths towards self-healing!

Kailona status

Right now, the alpha version of the Kailona app can perform the basic functions like requesting data from a health care provider and storing it, as well as sharing it through standardized API’s. A more complete feature list:

Aggregation of data

  • Request data from provider via Nextcloud links
  • Import documents via Nextcloud
  • Import medical images in DICOM format via Nextcloud
  • Import any EHR data in HL7 FHIR json or fhir xml format
  • Import activity data in tcx
  • Enter blood pressure
  • Enter vital signs
  • Enter physical data


  • Correlate blood pressure and activity
  • Review medical images in DICOM format via Nextcloud DICOM viewer app

Selective sharing

  • Share documents via Nextcloud
  • Share medical images in DICOM format via Nextcloud

How to help

The plan going forward is to release a beta, adding some important features:

  • Sync with withing blood pressure device API
  • Sync with google health API
  • Share all data as HL7 FHIR resource
  • Status tracking of data request

Your help is now needed: test, review, provide your feedback! You can install the app, request data from your doctor and tell us how the process works.

You can get the app on our app store, and set up a data server, info in the developer documentation.

Find the Nextcloud app here

For those that cannot or choose not to install a Nextcloud server, where will be an instance of the Kailona app on AWS and we will continuously update it.

The team has the following websites for documentation and community discussions: and

Some background

Kailona (“kailo-” Proto-Indo-European for “whole, uninjured, of good omen”) provides a global open-source platform for developers that allows individuals to make healthier choices and the research and developer community to accelerate health innovation.

We are an international team of designers, sociologists, anthropologists, and engineers passionate about the dignity, self-determination, trust and healing of people all over the globe.

The Kailona team is proud to be sponsored by the Prototype Fund, a project of the Open Knowledge Foundation Germany, funded by the Federal Ministry of Education and Research (BMBF) Förderkennzeichen 01|S20S38, MEDKEN, ACANIO and TOCA.


There are several broken Links in this Articles:

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cc @jospoortvliet

Thanks for correct links :wink: No-one at NC proof reads PR before publication ?? :frowning:

Looked very interesting but checking quickly specs and requirements to install the FIHR server to go with it is just no go !! Docker, reverse proxy, for storing health datas, that’s just insane and one more time something designed and built by computer geeks and in no way a solution for everyone/regular end-users that don’t have a degree in IT :frowning:

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Well, it’s a great thing that you can host this yourself independently from fitness tracker and others that force you to use specific cloud solutions. The additional FIHR server, sure it’s would be preferred to have this natively on Nextcloud but I don’t know if that is easily possible. With reverse proxies, you make it easier to install because if not you would have to install this FIHR server, configure it, make the link to a database, … a lot of steps compared to spinning up a docker image.

If it becomes popular, you could integrate it in the Nextcloud VM images, NextcloudPi etc. and these projects made it much easier to install Nextcloud (it was ‘harder’ in the beginning).

This is a fantastic approach! Congrats! We MUST protect healthcare data. In Finland, they hacked the largest psychiatrist-facility. 1000s of patienzs are being blackmailed. In the US, Cigna health invited Google to test their capabilities on 22 million patient files with the full patient names, etc… Will closely follow your progress. Again: Congrats - FHIR AND HL7! Super!

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Great product indeed.

Any plan to import data (like steps, heart rate ecc) from Apple Healthkit or Xiaomi cloud?

Thank you in advance!

the text was proof-read by the EHR team and we had agreed the links would be life but - well, we had some miscommunication there it seems :wink:

I also think this is great news and i would really like to test it. But as a poster before me already wrote, it is really difficult to set up the fhir server and get it working all together. Even for me and I have nextcloud dockerized with around 20 containers working together.